Saturday, October 13, 2012

one hundred thousandth


Lobule the wood looking forward the health
(Reporter Cheng Yu Photography Liuchen Ping) because the risk of congenital epidermal bullous lax disease, guitar wood lobular Wood was born two months after no real skin. Nine years, wrapped the body Nenpi crop stubble rupture bleeding, adhesion of the joints Nike Air Griffey Max, skin a little, just undress should be off the skin. 9 years, with her parents around the doctor can not cure. Today, five fingers actually bonded hand heart, two hands become red fist. The foot is a thin layer of skin wrapped like wearing only leather socks.
yesterday afternoon, the reporter saw Huaxi Hospital Dermatology lobular wood from Xichang. Lobular wood face Xianggang chafed skin off the left one right one. Lobular Wood's father said the daughter two months after the birth, and other kids do not like the whole body
red, wrapped in the skin is so thin and transparent, like fire hot, can not help but touch too easy, small Nenpi will rupture bleeding Northface Kids Northface Sale. Lobular wood's disease is a rare disease in the world - congenital epidermal bullous the lax disorder, the incidence of this disease is one hundred thousandth.
lobular wood should be disinfected daily, bathing, dressing cloth, each time, her gauze Shenzhe bloody, nurses are always careful to her gently scrub, disinfection, dressing, and then use gauze wrap. Because the skin has become quite thin, no longer be able to accept a large dose of liquid injected, yesterday lobular wood has stopped infusion. But she at least have to accept sub toe orthopedic surgery, cost up to hundreds of thousands Air Max 95 Mens.
doctors, lobular wood face and body skin now widely thinning scattered crusted fingers and palm adhesions merger hand, foot deformity
dysfunction. The biggest difficulty of the surgery that her palm and fingers completely adhesions, has atrophied tesujis North Face Windstopper Jackets, the length of the blood vessels is not enough, and once the force elongation will cause the blood vessels become flat lead to poor blood circulation. After the completion of the surgery, her fingers will not resume and like normal people, the palm of your hand and can not be fully extended, but the basic necessities of life, such as pen and write, it should be no problem.
West China Hospital, Department of Dermatology, doctors said, aplasia cutis bullous lax disease, genetic and acquired genetic gene deletion cause hereditary skin disease, no cure, and can only be controlled with medication. The hereditary generally does not appear deaths, and death in many skin ulcers caused by complications due. The acquired pneumoconiotic mostly due to drug allergy, as long as you can find allergens targeted therapies. 

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